List of people with ME/CFS

This is a list of notable people who have been diagnosed with or suspected to have myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Confirmed diagnosis

Name Occupation Nationality
Michelle Akers[1] Former Olympic soccer player American
Karin Alvtegen[2] Author Swedish
Paul Atherton[3] Television and film producer British
Elisabeth Tova Bailey[4] Author American
Ann Bannon[5] Author American
Richie Barnett[6] Rugby League player and television presenter New Zealander
Henrik Berggren[7] Lead singer in the band Broder Daniel Swedish
Emma Blackery[1] YouTuber and singer-songwriter British
Susan Blackmore[1] Writer and lecturer British
Howard Bloom[1] Publicist and writer American
Olaf Bodden[8] Professional soccer player German
Jennifer Brea[9] Documentary filmmaker and activist American
Ricky Carmichael[10] Motocross racer American
Cher[1][11] Recording artist, actress, director, and record producer American
Pema Chödrön[12] Buddhist nun American
Susanna Clarke[13] Author British
Tom Clarke[14] Politician British
Neil Codling[15] Keyboard player for the band Suede British
Yvette Cooper[16][17] Politician British
Dianna Cowern[18] YouTuber and science communicator American
Merryn Crofts Drama student whose death was caused by ME/CFS[19] British
Michael Crawford Actor and singer British
Marina Diamandis[20] Singer-Songwriter British
Mia Diekow[21] Musician, voice actress, patient advocate German
Laura Dundovic[22] Former Miss Universe Australia Australian
Blake Edwards[1][23] Film director, screenwriter and producer American
Florian-Ayala Fauna[24][25]Artist, musician, music producerAmerican
Flea (Michael Balzary)[26] Bassist of the Red Hot Chili Peppers Australian-American
Clare Francis[27] Yachtswoman and novelist British
Luke Ford[28] Journalist and blogger Australian-American
Ilko-Sascha Kowalczuk[29] German historian and author German
Leigh Hatcher[30] Journalist and news presenter Australian
Susan Harris[31] Television writer and producer American
Miranda Hart[32] Actress, comedian and writer British
Jens Höing[33] Racing driver German
Laura Hillenbrand[1][34] Author American
Andy Hunt[1][35] Association footballer British
Martin Jacques[36] Academic and writer British
Keith Jarrett[1] Jazz pianist American
Leonard A. Jason[37] Professor of psychology at DePaul University American
Stephan Jenkins[38] Lead singer of Third Eye Blind American
Brynmor John[39][40][41] Politician British
Roger King[42] Novelist British living in US
Trip Lee Rapper American
Peter Marshall[43] Squash player British
Brooks Mileson[44] Businessman British
Sophia Mirza[45] A woman who was the first to have CFS listed as a cause of death in the UK[45] British
Stuart Murdoch[46] Musician, lead singer in the band Belle and Sebastian British (Scottish)
Stevie Nicks[47] American singer-songwriter American
Andrew Oldcorn[48] Golfer British
Ronald Page[49] the plaintiff of Page v Smith British
Amy Peterson[1] Short track speed skater American
Martin Phillips[35] Association footballer British
David Puttnam[50] British film maker and producer British
John Rutter[51] Composer British
Bradley Simmonds[52] Radio DJ, host New Zealander
Ali Smith[1][53] Author British
Casey Stoner MotoGP world champion Australian
Amy Studt Musician British
Ari Taub Olympic Greco-Roman wrestler Canadian
Marina Weisband[54] Politician German
Naomi Weisstein[55] Author and neuroscientist American
Ken Wilber[56] Author American
Chris Willsher[1] Singer with The Bus Station Loonies British
Katharine Windsor[57] Duchess of Kent British

Suspected cases

Name Occupation Nationality
Harlan Ellison[58][59] Science-fiction writer American

See also

References

  1. 1 2 3 4 5 6 7 8 9 10 11 12 Lisman SR; Dougherty K (2007). Chronic Fatigue Syndrome For Dummies. John Wiley & Sons. pp. 297–302. ISBN 978-0-470-11772-9.
  2. ↑ Svenska Dagbladet, interview 2017-12-08 (in Swedish)
  3. ↑ "What About ME?" (Trailer). United Kingdom: Double D Productions. 2010. Event occurs at 3:57. Archived from the original on May 25, 2012. Retrieved 2012-05-16.
  4. ↑ Bailey, Elisabeth Tova (20 February 2011). "A Green World Deep in Winter: The Bedside Terrarium". The Yale Journal for Humanities in Medicine. Archived from the original on 2016-03-04.
  5. ↑ Cain, Paul (2007). "Ann Bannon". Leading the parade: Conversations with America's most influential lesbians and gay men. Scarecrow Press, Inc. pp. 155–163. ISBN 0-8108-5913-0
  6. ↑ "Our stories". ME Auckland. Retrieved 1 February 2016.
  7. ↑ "Henrik Berggren drabbad av kroniskt trötthetssyndrom" (Article in Swedish) http://www.aftonbladet.se/nojesbladet/musik/a/dKwyA/henrik-berggren-drabbad-av-kroniskt-trotthetssyndrom
  8. ↑ "Documentary "Der müde Stürmer"" (in German). Archived from the original on 2011-10-02. Retrieved 2008-12-09.
  9. ↑ "The story and stigma of a baffling illness: Jen Brea speaks at TEDSummit". TED Blog. 27 June 2016. Retrieved 18 July 2019.
  10. ↑ Perez AJ (2007-10-12). "Illness curtails Carmichael's motocross farewell". USA Today. Retrieved 2012-04-25.
  11. ↑ "Interview with Cher". BBC.co.uk. 2006-11-05. Archived from the original on September 26, 2004. Retrieved 2007-10-16.
  12. ↑ Shambhala Publications (2010). "About Pema Chödrön".
  13. ↑ "Susanna Clarke cancels book tour". Adweek.com. Archived from the original on 3 May 2018. Retrieved 27 February 2020.
  14. ↑ "MPs call for action on ME". BBC. 1999-05-12. Retrieved 2008-12-12.
  15. ↑ Cohen, J (2001-03-23). "Billboard Bits: Fatboy Slim, Suede, Keb' Mo'". Billboard. Retrieved 2008-12-09.
  16. ↑ "Who is Yvette Cooper? Labour leadership contender guide". BBC News. 10 September 2015. Retrieved 30 November 2024.
  17. ↑ Gordon, Bryony (5 June 2011). "Hay festival: Yvette Cooper talks of battle with ME". The Daily Telegraph. Retrieved 30 November 2024.
  18. ↑ "An Update On Dianna's Health". Youtube. 6 March 2023. Retrieved 7 March 2023.
  19. ↑ "'Vindication' for woman who wanted ME on death certificate". BBC News. 27 July 2018.
  20. ↑ Grow, Kory (12 July 2023). "MARINA OPENS UP ABOUT TIRING ILLNESS: 'IT'S BEEN HARD TO REMEMBER WHAT HEALTHY FEELS LIKE'". Rolling Stone. Retrieved 18 November 2025.
  21. ↑ deutschlandfunkkultur.de (29 December 2022). "Krisen bewältigen - Die Kraft der Hoffnung". Deutschlandfunk Kultur (in German). Retrieved 2024-07-31.
  22. ↑ Herald Sun (November 22, 2010). "TV dating host battles with fatigue".
  23. ↑ Harris K (December 16, 2010). "Blake Edwards, Versatile, Volatile Movie Director, Dies at 88". Archived from the original on December 18, 2010.
  24. ↑ A Blaze Ansuz staff (9 August 2019). "Hermetic Resistance: An Interview With Post-Industrial Artist Florian-Ayala Fauna". A Blaze Ansuz. WordPress. Retrieved 15 August 2019.
  25. ↑ Rodrigo (May 12, 2017). "CVLT Nation interviews Florian Ayala Fauna -". CVLT Nation. Blast Beat Network. Retrieved 13 May 2017.
  26. ↑ Fitzpatrick, R (2004). Red Hot Chili Peppers: Give It Away: The Stories Behind Every Song. Da Capo Press. pp. 140. ISBN 1-56025-579-X.
  27. ↑ "Clare Francis: A brief biography". Retrieved 2008-12-09.
  28. ↑ "A Painful Life Lesson from Chronic Fatigue Syndrome | Luke Ford".
  29. ↑ ""Ich habe 24 Stunden am Tag Schmerzen. Immer."". Stern. 2024-07-19. Retrieved 2025-03-19.
  30. ↑ "I'm Not Crazy, I'm Just A Little Unwell". Retrieved 2008-12-09.
  31. ↑ "Biography for Susan Harris". Internet Movie Database. Retrieved 2007-10-16.
  32. ↑ Acheson, Lucy (8 October 2024). "Miranda Hart: Lyme disease left me bed-bound". BBC News. Retrieved 17 January 2025.
  33. ↑ Cohen, J (2009-03-23). "Billboard Bits: Fatboy Slim, Suede, Keb' Mo'". Jens Höing. Retrieved 2008-12-09.
  34. ↑ "A Sudden Illness". The New Yorker. 30 June 2003. Retrieved 2011-12-14.
  35. 1 2 "Torquay's Phillips hangs up boots". BBC. 2007-05-17. Retrieved 2008-12-10.
  36. ↑ Kim Selig, Kate (15 October 2022). "A young life, interrupted: finding hope – and an identity – while suffering from long Covid". The Guardian. Retrieved 9 May 2026.
  37. ↑ Tuller, D (2008-04-30). "Expert Q&A, Learning Firsthand about Chronic Fatigue Syndrome". The New York Times. Archived from the original on 2009-10-13. Retrieved 2012-04-26.
  38. ↑ Vaziri, Aidin (21 July 2017). "Frankly, 3EB's Stephan Jenkins is older, wiser and doesn't give a damn". San Francisco Chronicle. p. 1. Retrieved 8 September 2023.
  39. ↑ Hooper, Malcolm; Williams, Margaret (February 2010). Magical Medicine: How to make a disease disappear (PDF) (Report).
  40. ↑ "Parliamentary business". Parliamentary Debates (Hansard). House of Commons. 1999-05-12. col. 270.
  41. ↑ Twisk, F. N.; Maes, M. (2009). "A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS". Neuro Endocrinol Letters. 30 (3): 284–299. PMID 19855350.
  42. ↑ King, Roger (2012). Love and Fatigue in America. University of Wisconsin Press. p. 254. ISBN 978-0-299-28720-7.
  43. ↑ Marshall P; Kehoe N (2001-03-16). Shattered: A Champion's Fight Against a Mystery Illness. Mainstream Publishing. ISBN 978-1-84018-395-5.
  44. ↑ Murray, E (2008-11-04). "Gretna owner Mileson dies". The Guardian. London. Retrieved 2008-12-09.
  45. 1 2 Hooper, R (2006-06-16). "First official UK death from chronic fatigue syndrome". New Scientist. Retrieved 2008-09-11.
  46. ↑ Ryan Prior (5 October 2018). "Indie pop sensation's disease became his muse". CNN. Retrieved 2020-11-04.
  47. ↑ Off The Record (2000-09-24). "Stevie Nicks Interview".
  48. ↑ Spencer, Peter (1998-05-01). "CFS: A suitable case for treatment" (PDF). The Psychologist. Vol. 11, no. 5. British Psychological Society. pp. 223–6. Retrieved 2024-10-19.
  49. ↑ Endeshaw, Assafa (1998). "Foreseeability of Nervous Shock to a 'Primary Victim' who Suffers no Physical Injury" (PDF). Mountbatten Journal of Legal Studies: 51. Retrieved 17 April 2025.
  50. ↑ Sarah Boseley (2004-04-27). "Puttnam tells of 16 years with ME". The Guardian. London. Retrieved 2009-01-06.
  51. ↑ Donald McLeod (25 January 2010). "Composer of the Week: John Rutter". YouTube. Retrieved 2013-10-10.
  52. ↑ Mauger, Rebecca (17 July 2024). "Ōmokoroa: Radio station run from CFS/ME sufferer's bed". The New Zealand Herald. Retrieved 28 February 2025.
  53. ↑ France, Louise (2005-05-22). "Life stories: Ali Smith". Guardian Unlimited. London. Retrieved 2007-10-16.
  54. ↑ Julia Dobrowski: "Habe gerade einen Rollstuhl beantragt": Marina Weisband über die Folgen ihres Chronischen Fatigue-Syndroms, Watson.de, 10 January 2022, retrieved 21 September 2022.
  55. ↑ Jesse Lemisch; Naomi Weisstein (1997). "Remarks on Naomi Weisstein". Archived from the original on 2008-05-22. Retrieved 2008-04-24.
  56. ↑ Ken Wilbur (2006). "Meditate and Eat Your Veggies".
  57. ↑ Wills S (September 21, 2022). "Famous faces at Queen Elizabeth II's funeral and which royals did not attend and why".
  58. ↑ "alt.fan.harlan-ellison FAQ". Archived from the original (TXT) on 2000-07-08.
  59. ↑ "Interview with Harlan Ellison | Nightdive Studios". nightdivestudios.com. Retrieved 2025-07-31.
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