Doron Weber

Weber in 2018

Doron Weber (born 1955) is an American author best known for his memoir, Immortal Bird: A Family Memoir,[1] and a foundation executive. At the Alfred P. Sloan Foundation he has created programs in science and the arts.

Early life

Born on a kibbutz in Israel in 1955,[2] Weber studied at the Sorbonne and Oxford University (M.A., 1981), where he was a Rhodes Scholar.[3]

Immortal Bird

Weber's memoir, Immortal Bird, a portrait of a teenager's short, vibrant life and the relationship between father and son, documented the family's navigation of the medical journey of Doron and Shealagh Weber's first child, Damon, who was born in 1988 with a congenital heart defect. The defect, a single ventricle, was repaired, allowing him to lead a full life until he developed new complications as a teen. When he was 16, Damon received a successful heart transplant but then died of a post-transplant infection that was misdiagnosed as organ rejection and left untreated.

The family brought suit in 2006 against New York-Presbyterian Hospital/Columbia University Medical Center where their son was a patient but, as of 2013, the suit remained unresolved. In addition to being named by The Washington Post in 2012 as one of “50 notable works of nonfiction”,[4] Immortal Bird was listed as one of Amazon's Best Books of the Month in February 2012,[5] a February 2012 Indie NEXT List,[6] and was one of nine selections of the 2013 Chautauqua Literary and Scientific Circle.[7]

Alfred P. Sloan Foundation work

Since 1995, Weber has worked as a program director at the Alfred P. Sloan Foundation, a nonprofit philanthropic organization that supports research and education in science, technology, and economic performance. As Vice President, Programs,[8] Weber runs the Public Understanding of Science and Technology Program where he pioneered the synergistic use of media and the arts to translate science for the public.[9][10][11][12] He has launched national programs in theater, film and television that commission, develop, produce, and distribute new work bridging the two cultures of science and the humanities.[13]

Awards

Sloan and his involvement were profiled in The New York Times,[14] The Boston Globe,[15] Fortune,[16] Filmmaker Magazine,[17] and The American Way.[18] Weber won the National Book Award's Literarian Award for outstanding service in 2018.[19]

Other civic work

Weber serves as President of The Writers' Room Board of Trustees,[20] Vice Chair of the Digital Public Library of America Steering Committee,[21] Advisory Board Member of the Science and Entertainment Exchange,[22] and Board Visitor of the Wikimedia Foundation.[23]

Publications

  • Immortal Bird[24]
  • Final Passages (with Judith C. Ahronheim)[25]
  • "Sabbath's Theater". Boston Review. October–November 1995.
  • “The Best and the Guiltiest,” The New York Times, July 26, 1993

References

  1. ↑ Lindbergh, Reeve (February 24, 2012). ""Immortal Bird: A Family Memoir" by Doron Weber". Washington Post. Archived from the original on April 12, 2013. Retrieved 20 January 2013.
  2. ↑ "Doron Weber". Time. 2024-04-27. Retrieved 2025-03-21.
  3. ↑ Novogratz, Jacqueline (August 23, 2004). "The Aspen Seven You think radical change is daunting?". Fortune Magazine. Archived from the original on March 24, 2007. Retrieved 18 January 2013.
  4. ↑ "Best of 2012: 50 notable works of nonfiction". Washington Post. November 16, 2012. Archived from the original on December 9, 2012. Retrieved 18 January 2013.
  5. ↑ "Best Books of the Month: February 2012". Amazon. Retrieved 18 January 2013.
  6. ↑ "February 2012 Indie Next List". Indiebound. Retrieved 18 January 2013.
  7. ↑ "2013 CLSC Selections". CLSC. Archived from the original on 17 May 2012. Retrieved 18 January 2013.
  8. ↑ "Staff Directory". Archived from the original on 2013-01-12. Retrieved 2013-01-17.
  9. ↑ "HIFF And Alfred P. Sloan Foundation Celebrate Ten Years". Hamptons.com. Retrieved 18 January 2013.
  10. ↑ Coakley, Jacob (17 October 2012), MTC Announces 2012 Alfred P. Sloan Commissions, retrieved 2013-01-20
  11. ↑ "Sundance Institute and Alfred P. Sloan Mark 10th Anniversary of Collaboration" (Press release). Sundance Film Festival. January 17, 2013. Archived from the original on February 6, 2013. Retrieved 2013-01-20.
  12. ↑ Cohen, Patricia (6 May 2011). "Sloan Group Is Lab Partner to the Arts". New York Times. Retrieved 2013-01-20.
  13. ↑ "Sloan Science & Film". scienceandfilm.org. Retrieved 2016-06-10.
  14. ↑ COHEN, PATRICIA (May 6, 2011). "Sloan Group Is Lab Partner to the Arts". New York Times.
  15. ↑ "Growing a Culture: If One Foundation Has Its Way, "Copenhagen" and "A Beautiful Mind" Won't be the Only Science You See on Stage and Screen". Boston Globe. January 26, 2003.
  16. ↑ "Teaching Science Through Entertainment". Fortune. August 23, 2004.
  17. ↑ "The Alfred P. Sloan Foundation's Doron Weber". Filmmaker Magazine. September 5, 2012.
  18. ↑ "Making Science Sexy". American Way.
  19. ↑ "Sloan Foundation programmer to receive honorary book award". Associated Press. 22 April 2021.
  20. ↑ "Board of Trustees". The Writers' Room. Archived from the original on 22 December 2012. Retrieved 19 January 2013.
  21. ↑ "Steering Committee". Digital Public Library of America. Archived from the original on 2 May 2012. Retrieved 19 January 2013.
  22. ↑ "Advisory Board". The Science & Entertainment Exchange. Retrieved 19 January 2013.
  23. ↑ "Vote:Board Visitor - Doron Weber". Wikimedia Foundation. Retrieved 19 January 2013.
  24. ↑ "A Death in the Family," The New York Times, February 2, 2012.
  25. ↑ "Final Passages: Positive Choices for the Dying and Their Loved Ones, Judith Ahronheim and Doron Weber, New York: Simon & Schuster, 1992. 285 pp.," cambridge.org.
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